Summary
The UCSD Biochemical Genteics and Metabolomics Laboratory and the UCSD Cystinosis Determination Laboratory
does not collect or maintain any personal information of website visitors.
No patient-related informationis stored or uploaded.
Website Visitors
We do not actively collect any personal information about website visitors unless a
visitor chooses to send an email message. The
website may maintain a standard Internet web log that includes IP addresses and
other information about visitors.
We do not routinely review or use the information in a web log. However,
if we suspect hacking, harassment, or illegal activity on the website, we may
review the web logs and share them with law enforcement agencies or others to
identify responsible individuals.
We may set cookies on
your computer when visiting our website. Any
cookies are session cookies, designed to be erased when your browser session
ends. We do not otherwise use
cookies to track individual activities on our website.
We do not use and do not disclose contact information about guests or users of this site
We may hire third parties to help us provide services.
Access, Correction, and Data Quality
We try to maintain accurate records, and we need the
assistance of data subjects to maintain complete and current records.
Anyone
who finds the information to be inaccurate or incomplete may submit a request
for correction to the UCSDBGML Administrator.
Contact
information for the UCSDBGML Administrator is at http://cystinosiscentral.org/Contact/
Complaints and Questions
Address questions or complaints about this policy to the UCSDBGML Administrator.
Policy History
Version 1.0 03-May-2015
First Public Version